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April 26, 2025I’m autistic, not a tragedy—and I’m done listening to fear-mongering from people who should know better, especially when they’re running the government.
Health and Human Services Secretary Robert F. Kennedy Jr. made a speech on April 16 in which he made many false assertions about autism.
The backlash was swift and immediate: Many organizations, autistic advocates, and even some non-autistic public figures like Ms. Rachel have publicly spoken out against Kennedy’s statements. This prompted Kennedy to do a circuit of interviews, in which he quadrupled down on his ableist fear-mongering.
Anti-autism ableism and dis- and misinformation is harmful. Below, I debunk some of the common myths about autism I’ve heard come out of Kennedy’s mouth, one by one.
Myth #1: Autism Is Growing at an Alarming Rate
During his speech, Kennedy reported the “alarming” rate in which autism cases were appearing in children.
“The ASD prevalence rate in 8-year-olds is now one in 31,” said the HHS secretary. “About 25 percent of the kids who are diagnosed with autism are nonverbal, non-toilet trained, and have other stereotypical features, [such as] head banging, tactile and light sensitivities, stimming, toe walking, etc.”
Cases of autism in children are rising simply because we know more about it. There is a wider range of behaviors attributed to autism now and research is more comprehensive, leading to more people being diagnosed and receiving help.
Additionally, there is no such thing as “full-blown autism.” What Kennedy is referring to is high-support needs (HSN) autism, also known as Level 3 Autism. Only 10 to 27 percent of autistic people fall into this group, though many do not have the limitations Kennedy mentioned.
“Even among those with an intellectual disability, there’s huge variability,” David Mandell, University of Pennsylvania psychiatry professor and director of the Penn Center for Mental Health, told PolitiFact. “People with Down’s Syndrome have an intellectual disability, but often are quite capable and can do all the things RFK points to.”
Kennedy referred to this rise in autism rates as “part of an unrelenting upward trend” and an “epidemic” multiple times throughout the speech.
In a later interview with Sean Hannity, Kennedy also claimed that he’s never seen an adult with “full-blown autism.” In the same sentence, he attempted to clarify that though he’s met “people with Asperger’s and, on the spectrum who are my age,” he’s never met “someone with full-blown autism.”
According to the HHS Secretary, “full-blown autism” means “nonverbal, non-toilet trained” and that “you don’t see these people walking around a mall, because they don’t exist at our age.”
Side note: Seriously? What is it with these ableist neurotypicals and their obsession with autistic people’s bathroom habits? Can autistic people just take a shit in peace?
Autistic people to RFK Jr.:
Myth #2: Autism Is Expensive to Treat
The 71-year-old prominent anti-vaccine activist also briefly touched on the rising costs of autism treatments in America. “The cost of treating autism in this country by 2035 so within 10 years, will be a trillion dollars a year. This is added to already astronomical healthcare costs.”
While it is true that the average cost for therapies for autistic people is high, and is expected to increase over time, it is worth noting that autism itself is not the reason why. The reason is lack of affordable or free healthcare and the limited amount of funds provided to actually help autistic people, especially for when those autistic children grow up into autistic adults.
Healthcare in the U.S. is in general vastly more expensive than in peer countries. In 2021, Americans spent almost double the amount per person on inpatient and outpatient care, despite having shorter hospital stays and fewer physician visits than their non-American counterparts.
Autistic content creator @LindsayMakesVideos posted a video on TikTok in February 2022 that sums up this point best:
“Do you have any idea how many people are dying to provide a safe space for these kids to thrive, but they can’t? [That is] because they can’t get funding. And what little they get must serve the interest of turning these kids into healthy producers for the economy.”
Myth #3: Autism “Destroys Families” and Is Caused by Avoidable “Environmental Exposure”
Kennedy ended his speech talking about the “individual tragedy” that is autism.
“Autism destroys families,” Kennedy claims. “These are children who should not be, who should not be suffering like this. These are kids who, many of them were fully functional and regressed because of some environmental exposure into autism when they’re 2 years old. And these are kids who will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go out on a date. Many of them will never use a toilet unassisted. And we have to recognize we are doing this to our children, and we need to put an end to it.”
First, and most obviously, autism does not “destroy” families. It’s important to remember that disability itself does not create unhappiness, but rather a system that restricts access to resources and opportunities for people with disabilities and their families.
Second, there is no “environmental exposures” that cause autism in any way (nor do vaccines cause autism for that matter). Autism is largely genetic: According to UCLA Medical School, “a majority (around 80%) of autism cases can be linked to inherited genetic mutations. The remaining cases likely stem from non-inherited mutations.”
Autism doesn’t start at 2 years old—it starts when we are born. I was born autistic.
Myth #4: Autism Is “Only Happening in Children”
Two days after giving that speech, Kennedy went on Fox News and essentially doubled down on his claims about autism, and then some.
“The autism, this epidemic is only happening in our children. It’s not happening in people our age,” Kennedy said during his interview with Hannity.
Actually, rates of autism diagnoses are on the rise in adults, too. In fact, the greatest increase in diagnosis rates isn’t in children—it’s in people aged 26 to 34, according to a 2024 study published in JAMA. Diagnosis rates also rose significantly in women and girls, demonstrating that support for people with autism has broadened over time.
Contrary to RFK Jr.’s assertion, Asperger’s Syndrome is not a legitimate diagnosable condition, as the term itself was removed from the Diagnostic and Statistical Manual of Mental Disorders (DSM) back in 2013 due to little significant difference between that and just regular ol’ autism spectrum disorder, as well as the fact that the name is linked with eugenics. (The name Asperger comes from Nazi collaborator Hans Asperger, who experimented on autistic children during the Holocaust.)
Many autistic activists have attempted to counter RFK Jr’s claims that autistic people will never pay taxes, hold a job or go on a date by touting their own personal accomplishments, like writing a book, living independently, or having a job they love. (“I would love to read RFK’s poetry, if he could share it,” Marianne Eloise, who is autistic and a published poet, told The New York Times. “I’m not familiar with his work.”)
But while good-intentioned, that was not the point. And, admittedly, there are autistic people who can’t do basic tasks without accommodations. Those are the autistic people he and the rest of the federal government is targeting, and they are the ones most at risk of getting hurt.
And they’re being harmed already. Earlier this year, the Trump administration listed the words “accessibility” and “disability,” when used in grant applications, as grounds for rejection. Additionally, Trump’s attack on the Department of Education targets kids—like those with autism—who need an equitable education system the most.
That does not mean HSN autistic people are less human, or that lower- to middle-support needs autistic people are less entitled to accommodations and accessibility.
All autistic people, regardless, are still people. And we deserve to be seen and treated as such, individually, with basic decency and broad access to the tools and services we need just to survive and exist.
Autistic People Have Heard This All Before
There is nothing new about what RFK Jr. said about autism. This type of rhetoric has been around for decades. In fact, this narrative about autism “destroying families” was popularized by the organization Autism Speaks back in 2009 with their advertisement entitled, “I Am Autism.”
The advertisement, created by Mexican filmmaker and Oscar winner Alfonso Cuarón and Grammy-nominated music producer Billy Mann, appears to show autism in a way that many autistic people (such as myself) find antagonistic and dehumanizing.
According to the Autism Self-Advocacy Network, “I am” Autism depicts autistic people as “useless burdens destroying their families and society.”
“I am autism
I know no color barrier, no religion, no morality, no currency
I work faster than pediatric aids, cancer, and diabetes combined
And if you’re happily married, I will make sure that your marriage fails.
Your money will fall into my hands, and I will bankrupt you for my own self-gain.
I don’t sleep, so I make sure you don’t either.
I will make it virtually impossible for your family to easily attend a temple, birthday party, or public park without a struggle, without embarrassment, without pain.
I am autism.
I have no interest in right or wrong. I derive great pleasure out of your loneliness.
I will fight to take away your hope. I will plot to rob you of your children and your dreams. I will make sure that every day you wake up you will cry, wondering who will take care of my child after I die?”
—Autism Speaks, “I am Autism” ad
What makes this even richer is that in the aftermath of Kennedy’s speech, Autism Speaks put out a statement condemning his statements and claims:
“Autism is not a preventable condition. The suggestion that it is—especially when linked to environmental toxins without scientific evidence—contributes to decades-old misinformation and distracts from the real needs of autistic people and their families. These narratives have historically fueled harmful rhetoric, including anti-vaccine sentiment and pseudoscientific claims, while drawing attention away from meaningful research and support.
“Framing autism as a personal or societal tragedy, and implying that autistic people are incapable of joy, growth, or fulfillment, is deeply hurtful. Statements that suggest autistic children will never contribute, connect, or thrive erase the full humanity of millions of people—and ignore the many ways autistic people enrich our world every day.
“At Autism Speaks, we remain focused on advancing scientific understanding while ensuring that autistic people are supported, seen, and celebrated. We believe progress requires listening to autistic voices and investing in their future: in healthcare, education, employment, housing, and research that reflects the full diversity of the spectrum.
“We are hopeful that this conversation can continue, and we invite Secretary Kennedy to meet with autistic people and families, to hear directly from those most affected, and to engage with the broader scientific community. We would welcome the opportunity to be part of that dialogue.”
While I agree with most of what they are saying on the surface, at no point does Autism Speaks take any accountability for popularizing and legitimizing those same harmful myths and narratives about autistic people.
Conclusion
It’s one thing for this rhetoric to come out of some random quack online. It’s another to have this come out of the very people in charge of the agencies that in one way or another affect autistic people’s lives.
As HHS Secretary, Kennedy oversees many departments that I, as well as many other autistic people and families, rely on. This includes, but is not limited to:
- Substance Abuse & Mental Health Services Administration
- Administration for Community Living
- Centers for Medicare & Medicaid Services
- Federal Occupational Health
What Kennedy said is dangerous—plain and simple.
As Jessica Saul, program director of EPIC Players Inclusion Company, Los Angeles, told Ms.:
“Blanket statements that frame autism as a ‘debilitating disease’ ignore the rich diversity and lived experiences of autistic individuals, many of whom lead full, meaningful and successful lives. This kind of rhetoric fuels stigma and marginalization, rather than promoting understanding and support. Instead of focusing on harmful misinformation, we should be working toward a society built on acceptance, inclusion and access—one that allows people across the autism spectrum to thrive and be respected for who they are.”
I am autistic. It affects everything I do and everything I am—from how I sleep, to how I walk, to how I talk, to how I breathe, and everything in between. I am autistic to my core.
I am also considered low- to middle-support needs.
I am very privileged to have the support of my dad, my caregiver, my therapist, my medical team, my professors at CSUN, the incredible people at Ms. magazine, and my found extended family at EPIC Players Los Angeles.
There are many autistic people who are not as privileged. Many autistic people require more support and accommodations than I do. And they should be given all accommodations and tools they need. Not dehumanization and isolation.
Autistic people are not a burden. We are not a scapegoat. We are not a tragedy.
We are human beings.
We are autism.
Great Job Red Rosenberg & the Team @ Ms. Magazine Source link for sharing this story.